About FSHD Global Research Foundation
We're Giving Life to Muscles!
By supporting research into FSHD muscular dystrophy and muscle regeneration, we can improve quality of life for everyone who needs muscles.
Think you might have FSHD?
Read more about FSHD muscluar dystrophy, including the unexpected warning signs. We can provide individual support from diagnosis to registering for clinical trials.
Join our mission
We are a patient-led organisation that acts with speed and impact - time is muscle!
What we do
We fund world-leading medical research and biotech to cure FSHD muscular dystrophy and regenerate muscles for all who need it. We are Australia's peak body for FSHD patient and medical advocacy.
Ways to help
From becoming a corporate sponsor, to regular giving or attending our Sydney Chocolate Ball and other events, there are so many ways you can help us achieve our vision.
Volunteer with us
We are a small but effective organisation and are always looking for skilled volunteers to help us with events or administration and other tasks. We are also looking for prize sponsors and pro bono advertising.
Clinical Trial Passport Program
Our flagship Clinical Trial Passport program pairs donors with Australian patients who need support obtaining an FSHD diagnosis to access clincial trials or a treatment when it becomes available. If you are a Team or an individual donor who can raise $6000, you can purchase a passport for one person who desperately needs answers and hope.
Newsletter
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Subscribe to our newsletter for updates on our funded research, fundraising events, and community stories.
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Contact Us
Questions or suggestions? Contact us by phone or email.
